Discharged

We left the hospital around 4:30, yay!

Chemo finished

Chemo finished last night around 12:30. Yesterday's chemo usually caused nausea and vomiting, but Liam hasn't felt sick (yet). He is just very tired and and grumpy, he wants to go home. If Liam keeps up as he is, we should get discharged at the end of the day today.

Day 3 of chemo

Day #3 of chemo still in progress. Liam spent the morning doing a lot of walking around exploring the unit. But he had some gravol (preventative) and is fast asleep now. He'll be getting the chemo until late tonight. He has the feeding tube again because he isn't too interested in eating.

Day 2 of chemo

Day 2 of chemo done. Today was about 3 hours of chemo, again no side effects have shown up, yet. Liam is just very tired, he got up at 6:00am, then went back to sleep until late morning, and was asleep early tonight. We attended a music therapy session, Liam enjoyed that.

First day of Chemo

Pretty uneventful day. Liam had his first day of chemo, it was just a day of sitting around. So far Liam feels fine, fighting bedtime as he always does! Today was day 1 of 3 of chemo for this month. We are admitted to the Children's Hospital for 3 or 4 days depending on how Liam does.

Tough News

It's been a tough couple of days. They found abnormal cells in Liam's spinal fluid, which makes him high risk instead of average risk, like they originally thought (hoped). They couldn't do this check until 3 weeks after the surgery. As a result, the plans have changed and we start chemo tomorrow. Liam will have 3 months of conventional chemo plus chemo in his spinal fluid, then 3 months of high dose chemo. (6 months total). We did the swallow test, and Liam was able to swallow food and liquid pretty well. He is able to eat now, although will keep the feeding tube through chemo. But now that he's used the feeding tube, he doesn't want to eat! Go figure. Though it is hard to celebrate this given the other news.

Stem cell harvest

Apheresis today, Liam will be hooked up to this crazy machine for a few hours (or more). They are collecting stem cells to use later with chemo.