Treatment Summary

This is a summary of Liam's diagnosis and treatment:

April 30, CT Scan identified tumour
May 1, 2012 Full resection of tumour
- Some side effects from the surgery, one being Liam's ability to swallow was impacted, a Barium x-ray test was done, food is not moving down Liam's throat properly, so he needs to be fed through an NG tube
May 11, 2012 Discharged

Diagnosis Average Risk Medulloblastoma (later changed to high risk)

May 18, 2012 First lumbar puncture to test CSF
     Put in Medcomp central line
May 24, 2012 Apheresis (harvest Liam's own stem cells)
May 24, 2012 Found out CSF tested positive for abnormal cells

Diagnosis changed to High Risk Medulloblastoma

Protocol: 3 cycles of Induction chemo, 3 cycles of Consolidation chemo with stem cell rescue

May 28, 2012 Swallow test showed Liam is now able to swallow liquids and food. He has weakness in the left vocal cord, but it is moving enough that Liam is able to swallow. He just needs us to remind him to swallow, he coughs and sputters a lot.

May 30, 2012 Chemo cycle course #1 of 3 Induction Phase
Lumbar puncture to test CSF & chemo into the CSF 
3 days of inpatient chemo
Weekly chemo (takes 5 minutes)
June 2, 2012 Discharged
June 9, 2012 Admitted due to fever
June 12, 2012 Liam & Dad shaved heads when Liam started losing his hair

June 19, 2012 Chemo cycle course #2 of 3 Induction Phase
Lumbar puncture to test CSF & chemo into the CSF
3 days of inpatient chemo
Weekly chemo (takes 5 minutes)
June 22, 2012 Discharged

July 5, 2012 MRI - Found something that "lit up" the MRI, unknown, need follow up MRI

July 9, 2012 Chemo cycle course #3 of 3 Induction Phase
Lumbar puncture to test CSF & chemo into the CSF
3 days of inpatient chemo
Weekly chemo (takes 5 minutes)
July 18, 2012 Admitted due to fever
 
July 27, 2012 MRI - "Lesion" did not shrink, there appears to be change, going to require surgery

Aug 7, 2012 Surgery on the unknown area
Unknown area biopsy tested negative, looks like necrosis (dying cells from previous surgery)
Aug 11, 2012 Discharge from hospital

Aug 20, 2012 Chemo Consolidation cycle #1 of 3
Aug 21, 22, 2012 High dose chemo
Aug 24, 2012 New Central Line - Broviac
Aug 27, 2012 Stem Cell rescue
Sept 7, 2012 Discharge

Sept 13, 2012 MRI - Spot that required surgery has gotten smaller!

Sept 16, 2012 Admitted due to fever
Sept 24, 2012 Fever ended
Sept 25, 2012 - Chemo Consolidation cycle #2 of 3
Sept 25, 26, 2012 High dose chemo
Sept 28, 2012 - Stem Cell Rescue
Oct 7, 2012 - Discharge


Oct 19, 2012- Chemo Consolidation cycle #3 of 3
Oct 18, 2012 Admitted to Unit 1
Oct 19, 20, 2012 High dose chemo
Oct 22, 2012 Stem Cell Rescue
Oct 31, 2012 - Discharge

Nov 15, 2012 - MRI - Stable. Nothing new showing, the spot that required surgery in Aug same size as Sept 13)
Nov 15, 2012 - Lumbar puncture (negative for disease)

Dec 14, 2012 Radiation started, daily radiation
Jan 29, 2013 - Last day of radiation!

END OF TREATMENT

Feb 27, 2013 - MRI & Lumbar puncture (MRI stable & LP negative; Hydrocephalus increased)

Mar 6, 2013 - Surgery to remove broviac catheter
April 10-17, 2013 - Liam's Wish Trip to Disneyland to meet Lightning McQueen!
May 9, 2013 - 3 month post treatment MRI (MRI stable; Hydrocephalus increased)

July 11, 2013 - "Quick MRI" to check hydrocephalus (Hydrocephalus increased slightly)

Aug 27, 2013 - 6 month MRI and Lumbar Puncture (Clean MRI & LP negative; Hydrocephalus slightly decreased)
Nov 2013 - Follow up 9 month MRI (head and spine MRI; hydrocephalus stable)
July 2014 - Follow up MRI
Oct 2014 - MRI to check hydrocephalus (Increase in hydrocephalus)
Nov 2014 - Laproscopic third ventriculostomy surgery to resolve hydrocephalus
Jan 2015 - Follow up head and spine MRI
July 2015 - Follow up head and spine MRI


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